Showing posts with label food. Show all posts
Showing posts with label food. Show all posts

Saturday, February 6, 2010

This is...

...why thinking I could stick to a heart-healthy diet during Mardi Gras may have been stupidly optimistic:

...what you see screaming your name from a glass case in a New Orleans mall:

...why I seriously lucked out with my hubby:

...this doesn't hurt his case either:

...what makes adjusting to being a SAHM such a dream:





Wednesday, February 3, 2010

To Tweet or Not to Tweet

Yesterday I cruised on over to NOLA for my monthly biopsy, echo, and clinic visit. Rather than staying in the hotel the night before, I decided to drive over early in the morning because I did not feel like the whole packing/unpacking deal. Well, let me tell you. I needed an industrial crane to keep my eyelids open nearly the whole two hours over. 
♦ Two Reminders ♦ 

  • The morning of labs you are NPO from midnight the night before until after your labs are drawn: usually around 8:00 a.m. NPO = no food or drink (nothing per oral) 
  • Prednisone (steroid) wires you, keeps you awake, prevents any hopes of an early bedtime - Those of you that have kept up with my CB from the beginning know of my sleeping horrors. Even though my dose has been drastically reduced, my sleeping patterns are still completely unpredictable, and I never know when I will fall asleep.
Of course I did not fall asleep until around 1:00 a.m. Monday night and I had to get up at  a little after 4:00 a.m. and be on the road by 5:45 a.m. with no fuel...in my body. i.e. no coffee, no PowerBar. Plus, it was dark for the first hour of the drive. I was really nervous about falling asleep, but my hubby called to check on me a little before seven and that helped wake me up. 
When I got to the lab, it was slammed! I have never seen that many people waiting for labs. I waited for 45 minutes which left me only 30 minutes to find something to eat. Typically this would not be an issue; however, Stacy (Mandras), my main cardiologist, suggested that I eat something heavy and salty the nights before biopsies because the excess water make the vein in which they insert the catheter in my neck much easier to navigate. I also have to have enough time for the anti-anxiety medication to kick in before the procedure. For some reason, my neck is especially sensitive to everything they to do to prep for the procedure. This is very unusual because needles do not bother me, and medical procedures in general do not bother me. Anyway, that is why I have to take an anti-anxiety meds on biopsy days. Immediately after lab, I ran down to Zucchini, the hospital cafe, and had some sausage, bacon, and cheese grits. It was like a little vacation from bland and doctors orders. =) 
The procedure went well and even though I have been feeling some different feelings around my heart everything looked fine on the echo. I will have to wait on the biopsy results for more details if there are any, and if everything looks good then I can come down on the steroids again. Yippee! 
As I was getting was getting my stuff together and chatting with the girls in the cath lab, Dr. Mandras was watching me while I was talking about my blogs and my Go Red group that I am trying to raise money through. They all told me how good I looked, how amazing it is, etc. Then Dr. Mandras looked me square in the eye and said, “I lost sleep over you...I was scared to death.” Then she began to tear up, couldn’t speak, and began wiping her eyes. She just rushed over and hugged me. This was funny because she about a whole head shorter than me; we giggled. How lucky am I to have such an amazing staff holding my heart in their hands? They are amazing from the top down: the attendings, the fellows, the nurses… I also got to see the other members of the transplant team that have worked so closely with me: Patel, Alkadri, Ventura. They are A-M-A-Z-I-N-G!!! They are like family to me now. I never thought that I would feel so comfortable with a bunch of cardiologists. I discuss books, writing, and education with Patel, movies with Alkadri, and hair, journals, and food with Mandras. Oh, and I didn’t to leave out the P.A.s: I you, Moriah! 



Upon leaving the hospital I decided to hit the quarter and enjoy the weather. Though I didn’t make it far (my boots were pinching), I soaked in every minute of it. I dipped in Peaches, the last true record store; Urban Outfitters, cannot believe I walked out empty-handed, a true sign of increasing self control; and Hard Rock for fajitas. I am usually not a big Hard Rock fan since it is typically food I can get anywhere, but it was by far the cleanest and the cool breeze just blew me right into their open doors. (I still have to be uber careful about germs.) Let me just say, those were the best fajitas that I have ever had! I do not know what they sauteed the onions and meat in, but it was divine and probably loaded with sodium. It’s ok to cheat for a day every once in a while. 
After being in the hospital for three months, careful watched for two, and a few weekend stays, I have begun to relish those moments on my own. It was such an incredible feeling just strolling down the street yesterday in a hat, cute outfit, and boots - not pj’s and slippers. I could have walked for hours. Next time I will have to remember to slip some Dr. Scholl’s in those boots so that I may extend my stay. 


I go back tomorrow for a neurology appointment and hitting up some antique stores and markets for some dirt cheap home decor. I am trying to warm this place up a bit; it’s coming along slowly but surely. 























To tweet or not to tweet? I am thinking of joining the masses. Do you like it or is it all a bunch of hoopla? 

Friday, January 29, 2010

The Poor Man's Plastic Surgery

Monday is the first day of February, and since I have gotten this blog fairly well established I am going to take a big step here and let you in on something. When I read Christina Lee’s post today, it was screaming at me to get my butt in gear as well, especially since I am supposed to living healthy by doctor’s orders anyway! Since I am starting in February, maybe I will have a higher success rate. I have never succeeded at a diet plan except for the week that I was on Nutrisystem a couple of summers ago. Notice that I said “week,” but I did lose 7 lbs. I only have about 25 lbs. to lose to be completely happy, but I really want to get toned this time, too.
Several people have asked me why I would still have to follow a heart-healthy diet, since I have a new heart. Well, I am sure that you have heard of coronary artery disease (CAD) via commercials for heart medicine, if not somewhere else; it is the leading cause of death worldwide! CAD is what causes heart attacks. Transplant patients are at risk for coronary artery vasculopathy (CAV). Which is the same as CAD, but due to the denervation of the heart during transplant her or she cannot feel the warning signs of CAV until it is too late: chest pains, shortness of breath, etc. During transplant, all of your nerves are not reconnected, only major arteries. Next to malignancy, this is the leading cause of death in transplant patients because since you cannot feel anything going on it leads to sudden death and progressive heart failure. The chance of this happening during the first year after transplant is around 15% - 20%, and 50% - 60% five years out. 

CAV is the reason I have to keep up a heart-healthy diet with a new heart; it’s a precaution since I won’t know if anything is going wrong in there. Also, in addition to CAV, because of the immunosuppressants (anti-rejection drugs) I have an increased risk of developing diabetes. Also, the prednisone (a steroid) causes major sweet cravings that can of course lead to diabetes. 
So...on Monday I will be getting back on as strict of a diet as I was on in the weeks following transplant in addition to beginning cardiac rehab and some pilates. In cardiac rehab, I will simply be walking on a treadmill while being closely monitored. I took a pilates class my last in college for a P.E. credit. I really liked it and what it did for my body. Plus, it’s not too strenuous on my sternum. 

I am going to start keeping a blog of my activities, weight loss, etc. Although I will probably post it on a new separate blog. We’ll see how the weekend goes, and I will post the link if and when I do. I know all of you are probably not that interested, but those of you that are we can keep up with each other and our progress that way. 

Ok...let's do this thing!